THE FIRST INDEPENDENT DATA INTELLIGENCE PLATFORM ON AUTISM IN BRAZIL
Mapa Autismo Brasil is a data intelligence platform dedicated to collecting, organizing, analyzing, and interpreting information about the autistic population in Brazil. Its goal is to generate valuable insights to better understand the characteristics, needs, and realities of autistic individuals in the country.
The initiative aims to answer the question Who is the autistic person? by gathering sociodemographic and clinical data. Through detailed and continuous mapping, MAB seeks to support public policies and promote more effective actions for the inclusion and well-being of the autistic community.
You can now participate in the Mapa Autismo Brasil 2025 survey.
Our
mission
Mapa Autismo Brasil seeks to map the sociodemographic profile of individuals diagnosed with autism, regardless of age, providing a comprehensive overview of autism in the Federal District and Brazil
Mapa Autismo Brasil aims to outline the sociodemographic and clinical profile of autistic individuals of all ages with a medical diagnosis. Through this analysis, we seek to create a detailed overview of autism across Brazil, providing essential data to support public policies and improve access to services and rights.
About the research
How does the research work?
01.
Methodologies
The research will be conducted 100% online , allowing any eligible person to participate in a simple and accessible way. We use a non-probability convenience sampling method, ensuring that a significant number of autistic individuals and their caregivers can contribute to this essential survey. This research has been reviewed and approved by the Research Ethics Committee in Human and Social Sciences (CEP/CHS) of the University of Brasília (CAAE: 85422624.9.0000.5540).
02.
Participants
Who can participate ?
Autistic individuals aged 18 or older who have a medical diagnosis and can respond independently.
Caregivers of autistic individuals under 18 or adults who are unable to complete the questionnaire on their own.
03.
Questionnaire
An online questionnaire (SurveyMonkey) will be provided. Upon starting, the respondent will be able to indicate if they are responding as:
- Autistic adults (18+) who can respond autonomously.
- Caregivers of autistic minors or adults who cannot respond on their own.
The questionnaire will not request sensitive data from respondents.
The questionnaire will cover:
- Sociodemographic profile of the autistic individual or the caregiver.
- Autism diagnosis.
- Education, therapies, and medical follow-up.
04.
Results
The research results will be available on our website. For questions or requests, please contact us via email at mapaautismobrasil@gmail.com.
We believe that this data will be essential to better understand the reality of autistic individuals in Brazil, contributing to the development of effective public policies, service strategies, improvements in service delivery, and the creation of new products aimed at the autistic community.
Sponsors
